People with Down's syndrome (easy read)

Advice on looking after your eyes for people with Down's syndrome. 

This is an easy read document

Looking after your eyes

Irritated eye

Lots of people with Down’s syndrome will have eye problems.

Three people

This factsheet will give people with Down’s syndrome information about eye care.

Optician

Opticians test your eyes.

They are also called optometrists.

We call them opticians in this factsheet.

Calendar

You should have an eye test every 2 years.

Your optician will tell you if you need your eyes tested more often.

Vision test

 

Everyone can have their eyes checked.

Having your eyes checked is called an eye examination, sight test or eye test.

We will call it an eye test in this factsheet.

You don’t need to read or write to have an eye test.

Eye tests

Eye test

An eye test can find out if your eyes are healthy.

The optician will check for health problems like diabetes.

Blurry vision

You may have problems seeing things clearly.

Clear vision

You may need glasses to see things clearly.

Glasses

The optician will check your eyesight and tell you if you need new glasses.

Glasses

Testing glasses

When choosing your glasses, ask if you can see a dispensing optician.

A dispensing optician has extra training to help choose and fit glasses.

Glasses

Everybody needs frames that fit well and are comfortable.

Fitting glasses

If you need glasses, the optician will measure your face to check your new glasses fit well.

Fitting glasses

Your glasses should rest on your nose and fit well over your ears.

You should be looking through the centre of the lens.

Fitting glasses

There are lots of frames that are very strong or very thin or flexible.

These frames might fit your face better.

You can ask your optician about this.

Hearing aid

If you wear a hearing aid your glasses should fit comfortably over your ear and hearing aid.

Fitting glasses

Make sure you can see through the clear lens of your glasses.

Ill fitting glasses

It can be easy to notice when glasses do not fit properly.

Glasses

There are different types of glasses to choose from.

You may need 2 pairs of glasses.

One pair for seeing things close to you, and one pair for seeing things further away.

Glasses

Bifocals or varifocals are glasses that have special lenses.

These lenses will help you see further away and close to you.

Sunglasses

You can get glasses that help you see clearly that are also sunglasses.

Some glasses have lenses that go dark when the sun is out.

Fixing glasses

Your optician can help you look after your glasses.

You can take your glasses back to your optician if they are not comfortable or you need to get them fixed.

They often do small repairs for free.

Eye problems

Holding head

People with Down’s syndrome are more likely to have problems with their eyes.

Here are some of the eye problems:

Blepharitis

Blepharitis

Some people with Down’s syndrome get sore, crusty and itchy eye lids.

This is called blepharitis.

It can be painful and irritating.

Conjunctivitis

Conjunctivitis

Sometimes people may get a sore and itchy eye.

This is called conjunctivitis.

It can be painful and irritating.

Rubbing eyes

Ask your optician, chemist or GP for help if you get sore eyes.

Blepharitis and conjunctivitis can make you want to rub your eyes a lot. This can make your eye worse.

Hay fever and other allergies may make your eyes itch too.

A squint

A Squint

A squint is when your eyes do not move together when you are looking at something.

Glasses can help you if you have a squint.

Glasses

If you have a squint it’s important to wear your glasses.

Talk to your optician if your squint gets worse.

Cataracts

Cataracts

A cataract is when the lens in your eye goes cloudy.

You can get a cataract at any age.

You can have a cataract in one eye or both eyes.

Having a cataract makes your eyesight worse.

A person with Down's syndrome

People with Down’s syndrome are more likely to have cataracts at a younger age.

A meeting

You or your supporters may notice a change in your eyesight.

You or your supporters may notice if your eye is getting cloudy.

An optician

Tell your optician if you think you might have a cataract.

Your optician may arrange an appointment for you at the hospital.

You can have an operation to fix your cataracts.

A form

We have two easy read resources on cataracts:

Keratoconus

Keratoconus

Some people, with Down’s syndrome have keratoconus.

It looks like the eye in this photo.

Blurry vision

If you have keratoconus:

Your eyesight can get worse quite quickly.

Covering eyes

You may find it hard to see in bright light.

Rubbing eyes

Your eye may be itchy.

Try not to poke or rub your eye.

Glasses

Wearing glasses can help.

Contact lens

Wearing contact lenses can help.

A doctor

Your optician will arrange an appointment for you at the hospital.

Your eye doctor may tell you about other ways to look after your eyes.