SeeAbility has found that three quarters (75%) of children with no history of eye care tested as part of the Children in Focus campaign were noted to have Autistic Spectrum Disorder (ASD). We are estimating over 33,000 children with ASD in England’s special schools could be missing out on routine eye care.

The alarming statistics come as MPs today debate a motion on World Autism Awareness Week, following a bid from Cheryl GIllan MP, Conservative MP for Chesham and Amersham. Cheryl has visited our sight testing project at Heritage House School in Chesham, Buckinghamshire.

We have been sight testing children in a number of special schools since 2013 and have released our second annual report titled ‘28 times more likely’, named because children with learning disabilities are 28 times more likely to have a serious sight problem. The report also exposes:

•   Over half of children tested had a vision problem

•   43% of pupils seen for the first time had no history of eye care

•   85% of those discharged from hospital eye clinics had no follow up community eye care

•   36% of children seen needed glasses

It follows our 2015 Children in Focus campaign launch, which revealed nearly four in ten children attending special schools in England have no history of eye care. After an additional year of sight testing behind us, we can now reveal a large proportion of that group are children with ASD.

Although every child in England is entitled to a free NHS sight test to pick up on any problems with vision and help prevent avoidable sight loss, many children with ASD can struggle to access community optical practices or hospital eye clinics where these sight tests are delivered. The environment or waiting time might be too stressful or overwhelming and parents may be worried that their child cannot cope.

With over half of children tested by SeeAbility having a vision problem, our sight testing model targets children at the highest risk of sight problems and brings eye care to the more convenient and familiar place of school. There are added benefits like providing glasses - including specialist frames - sharing strategies to help children get used to the new experience of wearing glasses and helping teachers to understand what a child can see in school.

Nasir (pictured) has ASD and Down’s Syndrome and attends The Village School in London. Strange places and new people make him feel anxious, which often leads to challenging behaviour. His mum openly admits she cannot take him to a hospital eye clinic or community optical practice, so when SeeAbility is able to be flexible when he is having a bad day and reschedule his sight tests for another week, it offers him routine eye care that he has never been able to access before.

From 2014-2015 there were over 460,000 missed or cancelled paediatric outpatient eye care appointments. In the SeeAbility sight testing model, if a child is too ill or anxious both likely reasons for not attending a hospital eye clinic their appointment is simply rearranged and allocated to another child on the day. The model also stops children and their parents requiring time out of school and work to attend.

We are calling on the government and NHS England for a national programme to provide routine eye care for children in special schools across England. Because children with learning disabilities can be reliant on hospitals for more routine eye care or check ups, we believe that our model could help ease some of the pressure on the NHS. Clinical Lead of the Children in Focus campaign, Lisa Donaldson, said:

I’m constantly being told by people that they thought someone was already carrying out this service for children with disabilities ... the simple fact is, while there are areas of good practice, this is not happening on a national scale. The SeeAbility sight testing model meets a recognised health inequality and reaches children who are unable to access community eye care and their right to a free NHS sight test. We would like to see a national programme that works for the child and builds the importance of vision into their education, giving them greater independence, a better education, and saving the NHS and care services money in the long run.

Watch our video at the top of the page to learn more about Nasir's story. You can make a £5 donation by texting SEE to 70004.