Please consider donating during the Big Give Christmas Challenge this year and help us raise £25,000 to unlock a fantastic total of £50,000 for our juvenile Batten disease outreach service. Donations will be doubled between midday Tuesday 28th November – midday Tuesday 5th December 2017.

Visit the Big Give website to have your donation to SeeAbility doubled.

There is extraordinary life-changing work that goes on at SeeAbility’s Heather House. For the last 16 years, this award-winning, world-leading specialist residential home has been caring for young people with devastating life-limiting conditions, including the incurable neurodegenerative juvenile Batten disease (JBD). 

But young people we support can hope to live 3-4 years longer than the international average, giving mothers, fathers, siblings and friends the precious gift of more time together. 

We help young people like Robert (pictured above), who has JBD. For the past five years, Robert has been living at Heather House – the only home of its kind in the UK. 

We feel like we can just be Mum and Dad now. We know SeeAbility care about Robert and we know he is safe. We trust SeeAbility. 

– Pam and Gary, Robert’s parents

£50,000 will enable us to fund a new Outreach Liaison Nurse to provide vital emotional, practical and clinical support to families that are caring for relatives with JBD that are not directly supported at Heather House. In addition, an outreach clinic will be held four times a year at our specialist centre, coordinating a team of skilled clinicians and professionals who understand JBD. This “one-stop” hub will improve the quality of life of both the people who live there and their families as they will be better able to manage the most distressing symptoms - reducing the need to attend hospital clinics.

Visit the Big Give website between midday Tuesday 28th November – midday Tuesday 5th December 2017 to donate to SeeAbility and have your donation matched!