Unique in the UK, Heather House has established a world-renowned reputation as a leading nursing care home for young adults with degenerative conditions. These include Juvenile Battens Disease (JBD) which describes a group of rare inherited neurodegenerative disorders presented in childhood.
The dedicated and professional staff team has combined experience with practice and works closely with leading geneticists to keep up to date with the latest research. In turn, they share their knowledge with key scientists around the world and for over a decade have contributed to the current nursing techniques in supporting someone with a life-limiting condition.
Support and treatment is centred on each individual as the response to JBD can be so different but considers the emotional, neurologically and physiologically affects. The resident physiotherapy team have created a unique programme which seeks to maintain muscle tone for as long as possible.
Staff work as a team driven by the challenge of giving the young people the best possible life. Families are actively encouraged to visit with on-site accommodation available for those travelling from further away.
Contact with trained volunteers can be arranged.